Blog Archives

Kuvan: Everything you Need to Know

If you or somebody you know has been diagnosed with PKU, chances are you’ve heard of Kuvan, one of the leading prescriptions on the market made to treat PKU. Finding data can be tricky, so we’ve made it our job to tackle all the most common questions to hopefully save you some time in your research.… Read the rest

Posted in PKU

Help! My Child Won’t Drink Formula!

We get it: formula sometimes isn’t the best. Despite that, much like medicine, implementing it into your routine when you’re diagnosed with PKU is just a part of life that needs to be conquered. For adults this is a simple reality; you keep up on your formula, you feel good!… Read the rest

Posted in PKU

College-Bound PKU

College move-in day is on the way, and you couldn’t be more excited. All the new people you’ll be meeting, different activities to be taking part in, and, most importantly, freedom! College is to be looked forward to, and the new experiences should be embraced! … Read the rest

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I Have PKU, Will My Child Get it Too?

Living with Phenylketonuria is a challenge in and of itself, as anybody that deals with it can likely tell you. It takes a strong commitment to building habits and sticking with a routine to manage the symptoms it brings; it’s no surprise that soon-to-be parents would be concerned about the chances of potentially passing it on to their children.… Read the rest

Posted in PKU